Hello, hello! I know...I have been shockingly absent over the last few years. There are a few reasons for that. The first is...our life has been pleasantly calm and quiet for the past few years as Covid has eaten away at our mandatory appointments and little to nothing has been happening for us medically, which, [...]
The year 2020 in review!
In this blog entry we discuss and show visual images of spine hardware malfunctions.
We arrived home on Sunday, and we were happy to do so. I found this trip a bit more stressful than prior trips. The surgery component was very stressful for me, made easier only with my trust in our surgeon. It is a difficult thing for a parent to hand over their child and have [...]
Did you know being “a Karen” is a thing...a bad thing?!? I had no idea until about a month ago. I grew up knowing exactly what my name meant: 'pure one' (totally fitting if you ask me). Now being a Karen (according to Dictionary.com) is a pejorative slang term for an obnoxious, angry, entitled, and often [...]
Ben’s surgery went well. We left the hotel and took a taxi to the hospital at 6:00 this morning. Our surgery was at Montreal Children’s (MCH). We didn’t get to see our lovely Dr. Pablo as he was away, but the anesthesiologist we had was great - he had worked with Ben before. We met [...]
Ok...today started off rather challenging in the caffeine sense. We were up at 6:00 a.m. again because we had to meet the surgeon at the hospital at 7:30, and I wanted to make sure I got there in plenty of time (he had a surgery at 8:00). I discovered an espresso machine in my hotel [...]
So today was a stay-in-the room day. Having given up on my dream of a decent cup of coffee in the morning (sniff...just a minute...I need to take a moment), I lowered myself to the shame of instant coffee. Anyways despite my somewhat dissatisfied start, I was willing to face a day of isolation, food [...]
We woke up this morning at 4:00 a.m. to get organized so we could head to the airport by 4:40. Most of the packing was already done - the tricky part was closing the suitcase. I normally take two suitcases, but we are usually here for a few months. I am thinking this will be [...]
Alright...things have escalated quickly for us from a week ago. We noticed last night that Ben’s tiny red dot has become more prominent and it seems to be scabbing up a bit. I sent an email to our team in Montreal at bed-time last night, and I woke up with an answer this morning. I [...]