1. Here we go again!

Well...I definitely feel like an update is in order...it's definitely me - not you! When September hit this year - I knew I was going to be busier than ever, and I was right...so let's start catching up. So, just to refresh...in August I posted about Ben's lump on the back of his neck. We [...]

An awesome stocking stuffer idea…

So... our local Edmonton Shriners (Al Shamal Shriners) are hosting The Al Shamal Shriners Group Night at the Oil Kings at Rogers Place on Friday February 14, 2020 Christmas and Valentines Day in one swoop! ... so I was thinking - wouldn't that make an awesome STOCKING STUFFER!!! I just wanted to take a minute [...]

We’re Home!

Well...it's been a crazy busy 24 hours, but we are home.  I'll fill you in on some of the details.  First off, we did our X-rays on Tuesday morning to see how Ben looks standing up.  The good news is that his thoracic (chest) area looks really good.  It's looking pretty straight.  His neck is [...]

Uncertain Beginnings Part A 

When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to).  At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine.  We were transferred to our local [...]