We’re Home!

Well...it's been a crazy busy 24 hours, but we are home.  I'll fill you in on some of the details.  First off, we did our X-rays on Tuesday morning to see how Ben looks standing up.  The good news is that his thoracic (chest) area looks really good.  It's looking pretty straight.  His neck is [...]

Uncertain Beginnings Part A 

When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to).  At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine.  We were transferred to our local [...]

Busy Days…

Ben is getting stronger day by day.  We have now renamed his left hand 'Lazy" and Ben has to reach up and touch some hanging gorilla/bear to pay for special treats he wants...ie:  ipad = 5 Lazy touches.  It seems to be helping.  We have shortened our traction times to make it more manageable.  Today [...]

The Art of Bullying 

Although bullying these days tends to be frowned upon, it is still discreetly (or sometimes not so discreetly) active in our schools today.  You can put on your pink anti bullying shirt for a day, but the next day is teasing as usual.  Children with physical disabilities are two times more likely to be bullied [...]