What a year 2018 was!!!

Wow!  I can't believe another year has flown by.  All in all - it was a fabulous year for us!  Our whole family was healthy this year; we had no hospital stays, and Ben seems to have somewhat caught up from the gaps in his learning from missing so much of  grade one. Here are [...]

Uncertain Beginnings Part A 

When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to).  At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine.  We were transferred to our local [...]

The Gift of School

School in the hospital has three major benefits: it gives the patients a regular routine which helps to pass the days; it helps distract from the aches and pains of everyday hospital life, and it provides a critical and necessary opportunity to help the students keep up with their studies back home.  It also pulls [...]

I like to move it move it…

They made me a walker here.  It's pretty big, but I can push it all by myself.  Everybody laughs and says they can't believe how good I am at walking.  That's funny because I used to always walk.  Sometimes I get stuck in doors or go into walls, but someone always helps me unstick.  They [...]

Our Superheroes wear Fezzes

Ya, I know you think I misspelled that, but I didn't!  The plural of fez (a flat topped hat) is fezzes or fezes.  I thought fezes looked pretty similar to feces, so I opted for the first spelling and "Our Superheroes Wear Feces" is a way different story than I intend to tell at this [...]

Valentines Day

Today was super awesome!  This morning before anyone was even awake my mom and I dropped off candies and Valentines at everyone's door.  After breakfast, I went to school, but in the middle of school some people from the Starlight Foundation came in and made cupcakes with us.  The main cooker was a clown named [...]