Our Altered Life – a book review

I bought this book almost two years ago. I knew that the syndrome discussed in the book was also my son's syndrome, but I just didn't want to read a book that was going to be a downer. Finally this summer I pulled it out and literally couldn't put it down for three days. My [...]

What a year 2018 was!!!

Wow!  I can't believe another year has flown by.  All in all - it was a fabulous year for us!  Our whole family was healthy this year; we had no hospital stays, and Ben seems to have somewhat caught up from the gaps in his learning from missing so much of  grade one. Here are [...]

Uncertain Beginnings Part A 

When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to).  At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine.  We were transferred to our local [...]

The Gift of School

School in the hospital has three major benefits: it gives the patients a regular routine which helps to pass the days; it helps distract from the aches and pains of everyday hospital life, and it provides a critical and necessary opportunity to help the students keep up with their studies back home.  It also pulls [...]

I like to move it move it…

They made me a walker here.  It's pretty big, but I can push it all by myself.  Everybody laughs and says they can't believe how good I am at walking.  That's funny because I used to always walk.  Sometimes I get stuck in doors or go into walls, but someone always helps me unstick.  They [...]