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"Love recognizes no barriers. It jumps hurdles, leaps fences, penetrates walls, to arrive at its destination full of hope." – Maya Angelou

Tag: hearing aids

The Lump

August 28, 2019August 28, 2019 Crooked Journey1 Comment

We've had a pretty amazing year, but I have had some worries. The most significant worry this year was and is "the lump". I started noticing "the lump" in about November/December. I think it was there before that, but to be honest it didn't really start to freak me out until about February. It started [...]

Posted in Mom's BlogTagged BAHA, Goldenhar syndrome, hearing aids, scoliosis, Shriners Hospital, spine surgery, surgery

Complicated Hearing

August 13, 2019 Crooked Journey5 Comments

photo courtesy of http://www.microtia.net

Posted in Mom's BlogTagged BAHA, BAHA surgery, bone anchored hearing aid, cochlear implant, goldenhar, Goldenhar syndrome, hearing aids, hearing loss, implant surgery, in-the-ear hearing aid, microtia

A year ago today…

February 8, 2018March 31, 2019 Crooked Journey12 Comments

Ben's recovery from surgery a year later.

Posted in Life and Follow-ups, Mom's BlogTagged BAHA, Goldenhar syndrome, hearing aids, long term hospital stay, neck brace, parenting, recovery period, Ronald McDonald House, scoliosis, Shriner's, surgery

Fidget Spinner

June 12, 2017March 31, 2019 Crooked Journey9 Comments

The ironies in life never cease to amaze me.  I sent Ben to school today wearing his brand new top-of-the-line Bone Anchored Hearing Aids (BAHA's) which are worth about $14,000 and I don't even have the FM system or the receivers yet.  What he didn't get to bring to school today was his fidget spinner [...]

Posted in Life and Follow-ups, Mom's BlogTagged BAHA, hearing aids

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