Blog post discussing our growth rod surgery and osteotomy surgery – in hospital stay at Shriners Montreal
PICU's (Pediatric Intensive Care Units) are scary places to be at the hospital. If something goes horribly wrong with your child, it is far more likely to happen while you are in the PICU. After Ben's surgery, he was admitted to the PICU at Montreal Children's. While we waited for them to finish his surgery, we [...]
So we got home Thursday, and I was able to enjoy some Thai food and wine with the family. Then I had the BEST SLEEP OF MY LIFE! It's so strange to wake up and not have large groups of people looking at you. I may need to buy some Grey's Anatomy posters to hang [...]
Well...it's been a crazy busy 24 hours, but we are home. I'll fill you in on some of the details. First off, we did our X-rays on Tuesday morning to see how Ben looks standing up. The good news is that his thoracic (chest) area looks really good. It's looking pretty straight. His neck is [...]
When Ben was about three or four months old I started to notice a pattern in his breathing while he was sleeping. It went like this....breathe, breathe, breathe, stop...repeat. At that point I brought it to his pediatrician's attention. "I'm worried about his breathing" I said. "He keeps stopping, then it seems to restart". She did [...]
When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to). At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine. We were transferred to our local [...]
Last Monday Ben could not grasp your hand with his left hand and squeeze it in a way that you could discernably feel it was being squeezed. His head was also sitting in a twisted way on his neck that made me shudder and think..."oh my God - we've made it worse". He could not [...]
Ben is getting stronger day by day. We have now renamed his left hand 'Lazy" and Ben has to reach up and touch some hanging gorilla/bear to pay for special treats he wants...ie: ipad = 5 Lazy touches. It seems to be helping. We have shortened our traction times to make it more manageable. Today [...]
First of all - just a little housekeeping about the blog - people have been asking me and you DO NOT need a wordpress account to follow the blog - just ignore the line that asks for that. You can do it just using your email account. If you can't get that to work, you [...]
Although bullying these days tends to be frowned upon, it is still discreetly (or sometimes not so discreetly) active in our schools today. You can put on your pink anti bullying shirt for a day, but the next day is teasing as usual. Children with physical disabilities are two times more likely to be bullied [...]
Stand back Robert Downey Jr. - the real Iron Man is laying in a bed in Montreal! Today I wanted to share with you some of the details of our surgery. I was worried to do so before the surgery because so many things could have happened to change our surgical plan. Now that it [...]
Crooked Journey 