Ben's fever resolved itself at about 4:00 a.m. Ben continues to have fast shallow breathing, but it could be related to his pain. He woke up this morning with a significant amount of pain, and we worked with the Acute Pain Management team at MCH to try to make him comfortable. Benjamin was given his own P.C.A [...]
Category: Shriner’s Hospital Stay 2017
Blog post discussing our growth rod surgery and osteotomy surgery – in hospital stay at Shriners Montreal
ICU Quick Update
First of all, we've had a bit better and less roller-coastery day than yesterday. We were able to extubate Ben this morning. By the time we did, we were both eager to do so. Once we pulled Ben out of sedation, in order to extubate him, he was extremely agitated with the tube. This caused [...]
A Night in the ICU
After the news from our surgeon last night, Jesse and I were elated! It's amazing the way darkness can try to seduce your thoughts when you have so much at risk. We left Shriners, where we had been waiting, to head across to MCH. We were almost giddy with relief. We ran down and grabbed [...]
Earned my gold today!
K...update. It is 5:30 our time, and I just talked to the surgeon. Ben should be out of the OR in the next hour or so. All the tricky stuff is done - they are just wrapping things up. The surgeon was pleased with how the surgery went. We were able to do both the [...]
Ben’s in surgery
Just a quick note that Ben went into surgery at 8:30 this morning Quebec time. I was able to put him to sleep myself. He continues to amaze us all! His surgery will likely take most of the day. I will do a quick update to this post when he gets out.
If worry was an Olympic Sport
If worry was an Olympic sport, I think I'd bring home the gold. Before you even start reading, I apologize; I have a lot of time on my hands. This is what I think it would look like if worrying was an Olympic sport. ************************************************************************** Announcer Bob: Well it's looking to be a grey day [...]
If this was Survivor…
So here we are at our 39th day in the hospital. That means if this were Survivor we'd have a one in three chance of winning a million dollars. Now as I stand before Tribal council (or Ben's growing collection of bears, stuffies, and Courage) I look within and ask myself ...did I outwit, outlast, and [...]
The Gift of Hope
One of the most difficult lessons that I have learned over the past few years was that I can't give hope to someone. It is not up to me to tell someone else that everything will be fine. I really resisted this idea at first, but over time I think I am starting to get [...]
Pajama Party
Imagine this conversation: Karen (to accountant) Hi there - I've printed out all my profit and loss statements for last year. I wasn't sure if this was the balance sheet you were looking for. Does that look right to you? Do you think I need to include the receipts for the new computer software I've been [...]
Surgery Postponed…
So we took some more x-rays today, and Benjamin's surgery has been postponed for a few weeks to March 27th. At that time we will still be vulnerable to further postponement because we will require an ICU bed at Montreal Children's Hospital, but for now that is our new intended surgery date. Although I am [...]