11B. Surgery Day Recap

We were up super early this morning. I woke up at 4:30, finished packing and got us ready. We will not be returning to our hospital room because when we arrive back at Shriners they will put us right across from the nursing unit. So...that means packing up, and it’s amazing how much crap you [...]

10. Tomorrow’s surgery

So tomorrow is the day we've been dreading since our last big surgery three years ago. We will start preparations tonight and we will be the first and only patient for our doctor tomorrow. I will head over the the other hospital at 6:30 to register us as inpatients and take care of all the [...]

9. Cute from the Inside Out!

So...I was sitting with my amazing nurse practitioner today, and we were scrolling through Ben’s CT scans. As the images were moving past, me (being the smart ass I am) said ‘I think I can see what the problem is. There is a puppy inside him’. We both looked again and burst out laughing! Hmmm...no [...]

4. We can get out of bed!

We were transferred to Shriner's Monday. It was a crazy, busy day. Once we arrived, I had some paperwork to do and Ben was examined regularly to ensure that he was doing well because he had just gotten off anesthesia. So far, so good. Ben has 5 screws (posts/pins) installed into his head holding his [...]

3. Well…that went well!

Despite a way too early start, the day has gone great so far! I was up at 4:30 - getting ready and packing up. I work Ben up at 5:15 to have some juice and get him in the shower. We bathed him last night in chlorhexidine and washed his hair with it, but I [...]

1. Here we go again!

Well...I definitely feel like an update is in order...it's definitely me - not you! When September hit this year - I knew I was going to be busier than ever, and I was right...so let's start catching up. So, just to refresh...in August I posted about Ben's lump on the back of his neck. We [...]

Something Amazing Happened This Summer!

I am so excited to tell you about something amazing that happened this summer. Benjamin went to summer camp! How awesome is that! I know you may be thinking - big deal - tonnes of kids go to camp. However, most people might not know that it is darned near impossible for kids with complicated [...]