Home again, home again, jiggety jig! July 21, 2020

We arrived home on Sunday, and we were happy to do so. I found this trip a bit more stressful than prior trips. The surgery component was very stressful for me, made easier only with my trust in our surgeon. It is a difficult thing for a parent to hand over their child and have [...]

I didn’t see this coming… July 18, 2020

Did you know being “a Karen” is a thing...a bad thing?!? I had no idea until about a month ago. I grew up knowing exactly what my name meant: 'pure one' (totally fitting if you ask me). Now being a Karen (according to Dictionary.com) is a pejorative slang term for an obnoxious, angry, entitled, and often [...]

Packing List and update July 13, 2020

Ok...today started off rather challenging in the caffeine sense. We were up at 6:00 a.m. again because we had to meet the surgeon at the hospital at 7:30, and I wanted to make sure I got there in plenty of time (he had a surgery at 8:00). I discovered an espresso machine in my hotel [...]

The night before surgery – July 14, 2020

So today was a stay-in-the room day. Having given up on my dream of a decent cup of coffee in the morning (sniff...just a minute...I need to take a moment), I lowered myself to the shame of instant coffee. Anyways despite my somewhat dissatisfied start, I was willing to face a day of isolation, food [...]

Post-Covid Travel July 12, 2020

We woke up this morning at 4:00 a.m. to get organized so we could head to the airport by 4:40. Most of the packing was already done - the tricky part was closing the suitcase. I normally take two suitcases, but we are usually here for a few months. I am thinking this will be [...]

Quick Update… July 7, 2020

Alright...things have escalated quickly for us from a week ago. We noticed last night that Ben’s tiny red dot has become more prominent and it seems to be scabbing up a bit. I sent an email to our team in Montreal at bed-time last night, and I woke up with an answer this morning. I [...]

Boy – it’s been a while! July 2, 2020

I certainly owe you guys an apology. I wanted to update you all when we arrived home and got back into routine, but....hmmm...that never happened. Instead we came home to a zombie apocalypse where toilet paper became its own currency and hand sanitizer became the new truffle. Anyways, we are home - we are safe, [...]

16. A Happy Reunion

Well - we are back home again. Ben, of course, was thrilled to see his dog again. We both came back a little tired, but we are slowly unpacking and building our new routine. I have decided to keep the structure of the school schedule at the hospital to help us stay on track with [...]

15. We’ve Been Shrinered

Things started moving very quickly once Ben was off oxygen. He started taking little walking trips and was able to go back to school. He is at the point where we just need to manage his pain and let him heal. He is also on iron to help him replenish the blood he lost. So...home [...]