Something Amazing Happened This Summer!

I am so excited to tell you about something amazing that happened this summer. Benjamin went to summer camp! How awesome is that! I know you may be thinking - big deal - tonnes of kids go to camp. However, most people might not know that it is darned near impossible for kids with complicated [...]

We’re Home!

Well...it's been a crazy busy 24 hours, but we are home.  I'll fill you in on some of the details.  First off, we did our X-rays on Tuesday morning to see how Ben looks standing up.  The good news is that his thoracic (chest) area looks really good.  It's looking pretty straight.  His neck is [...]

Uncertain Beginnings Part A 

When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to).  At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine.  We were transferred to our local [...]