Uncertain Beginnings Part A 

When Ben was born, it took us about 4 days (I think) to get diagnosed with Goldenhar spectrum or syndrome (depending who you are talking to).  At the time, I didn't really know what that meant, I only knew that it affected his eye, his ears, and his spine.  We were transferred to our local [...]

Uncertain Beginnings…..Part B

When Ben was about three or four months old I started to notice a pattern in his breathing while he was sleeping.  It went like this....breathe, breathe, breathe, stop...repeat.   At that point I brought it to his pediatrician's attention.  "I'm worried about his breathing" I said.  "He keeps stopping, then it seems to restart".  She did [...]

What a year 2018 was!!!

Wow!  I can't believe another year has flown by.  All in all - it was a fabulous year for us!  Our whole family was healthy this year; we had no hospital stays, and Ben seems to have somewhat caught up from the gaps in his learning from missing so much of  grade one. Here are [...]