parent advocacy – Crooked Journey

10. Tomorrow’s surgery

February 25, 2020September 6, 2020 Crooked Journey16 Comments

So tomorrow is the day we've been dreading since our last big surgery three years ago. We will start preparations tonight and we will be the first and only patient for our doctor tomorrow. I will head over the the other hospital at 6:30 to register us as inpatients and take care of all the [...]

Our Altered Life – a book review

September 1, 2019September 2, 2019 Crooked Journey2 Comments

I bought this book almost two years ago. I knew that the syndrome discussed in the book was also my son's syndrome, but I just didn't want to read a book that was going to be a downer. Finally this summer I pulled it out and literally couldn't put it down for three days. My [...]