I bought this book almost two years ago. I knew that the syndrome discussed in the book was also my son's syndrome, but I just didn't want to read a book that was going to be a downer. Finally this summer I pulled it out and literally couldn't put it down for three days. My [...]
Well....first of all, it has been quite a while since I posted. This year has been incredibly busy....Ben has been playing 'catch up' all year with school, appointments, and life in general. I also have been playing 'catch up' work wise....I started working part-time at the kids' school in September, which quickly became full time. [...]
Ben's recovery from surgery a year later.
As my six year old son and I were told less than a week ago that we would be going to live in a hospital 3,500 km away for a few months, I have been mentally bracing myself for some difficult questions he may or may not ask. Having said that, I wasn't ready for [...]