4. We can get out of bed!

We were transferred to Shriner's Monday. It was a crazy, busy day. Once we arrived, I had some paperwork to do and Ben was examined regularly to ensure that he was doing well because he had just gotten off anesthesia. So far, so good. Ben has 5 screws (posts/pins) installed into his head holding his [...]

3. Well…that went well!

Despite a way too early start, the day has gone great so far! I was up at 4:30 - getting ready and packing up. I work Ben up at 5:15 to have some juice and get him in the shower. We bathed him last night in chlorhexidine and washed his hair with it, but I [...]

1. Here we go again!

Well...I definitely feel like an update is in order...it's definitely me - not you! When September hit this year - I knew I was going to be busier than ever, and I was right...so let's start catching up. So, just to refresh...in August I posted about Ben's lump on the back of his neck. We [...]

An awesome stocking stuffer idea…

So... our local Edmonton Shriners (Al Shamal Shriners) are hosting The Al Shamal Shriners Group Night at the Oil Kings at Rogers Place on Friday February 14, 2020 Christmas and Valentines Day in one swoop! ... so I was thinking - wouldn't that make an awesome STOCKING STUFFER!!! I just wanted to take a minute [...]

What a ding-a-ling!

I've spent money on a lot of stupid things over the years, but by far, the stupidest money I have ever spent was on a doorbell for our new dog. "Communication is important" I said. I worried that he was too clumsy to scratch on the door to go out. Whenever I lifted his paws [...]

Something Amazing Happened This Summer!

I am so excited to tell you about something amazing that happened this summer. Benjamin went to summer camp! How awesome is that! I know you may be thinking - big deal - tonnes of kids go to camp. However, most people might not know that it is darned near impossible for kids with complicated [...]

Our Altered Life – a book review

I bought this book almost two years ago. I knew that the syndrome discussed in the book was also my son's syndrome, but I just didn't want to read a book that was going to be a downer. Finally this summer I pulled it out and literally couldn't put it down for three days. My [...]