I received an email last night letting me know that Hope Airlines - a WestJet Cares for Kids partner charity is celebrating 10 years of flying Canadians to their medical appointments. I believe I read somewhere that they have donated over 65,000 flights over the past 10 years. That's a lot of free salty snacks! [...]
I know that I sometimes have a tendency for paranoia, but I have always thought that social workers were put on this planet to steal people's babies. Any time they walk by me in a hospital, I hold Benjamin a bit tighter. The last time we were admitted for a while, we had quite the [...]
Ben had a good weekend visiting with his dad and his sister. It is these little distractions that help make time pass a bit more quickly around here. Our weekdays actually go by fairly quickly, but our weekends seem endless. However, I was able to recharge a bit this weekend and spend some time with [...]
School in the hospital has three major benefits: it gives the patients a regular routine which helps to pass the days; it helps distract from the aches and pains of everyday hospital life, and it provides a critical and necessary opportunity to help the students keep up with their studies back home. It also pulls [...]
Ya, I know you think I misspelled that, but I didn't! The plural of fez (a flat topped hat) is fezzes or fezes. I thought fezes looked pretty similar to feces, so I opted for the first spelling and "Our Superheroes Wear Feces" is a way different story than I intend to tell at this [...]
Today was super awesome! This morning before anyone was even awake my mom and I dropped off candies and Valentines at everyone's door. After breakfast, I went to school, but in the middle of school some people from the Starlight Foundation came in and made cupcakes with us. The main cooker was a clown named [...]
When I was a kid, it seemed like things were a bit simpler schedule wise. Our sports were whatever we chose to stay at school to do and appointments were only booked when absolutely necessary. Most parents worked all day, so we often fended for ourselves until they came home. As a parent now, my [...]
First of all, I apologize for the essay like nature of this post. The fact of the matter is, I have got way too much time on my hands, so I apologize. If you are a super busy person, you should just skip this one. Did I mention that we are in isolation? Yup...we are. [...]
Ben had a bit of a rough day! He's hanging in there, but the pain for him can be overwhelming at times. We are trying a lot of different medications and combinations, but it can be tricky to stay ahead of it. Surprisingly, the halo on his head - picture a steel bowling ball frame [...]
Ben made it through his surgery well. He had a difficult intubation, so they are keeping us at MCH overnight. They installed the halo and also did an anchor on his lumbar spine. He isn't talking much, but gives a thumbs-up when asked how he is. Tonight will be all about comfort and pain management. [...]
Crooked Journey 