This morning when I got up the doctors were in my room. They looked at me and made me do some of my muscle tests. One doctor said I was a bit weak on one side and saw that my neck doesn't really move. It was really hard for me to squeeze his hand. He [...]
Although bullying these days tends to be frowned upon, it is still discreetly (or sometimes not so discreetly) active in our schools today. You can put on your pink anti bullying shirt for a day, but the next day is teasing as usual. Children with physical disabilities are two times more likely to be bullied [...]
When I woke up this morning I asked Mom if it was movie day. She said it was, and if I worked hard at physio and ate some food today I could go to the movie. I wasn't allowed to eat popcorn though because my tummy doesn't really like food yet. Instead I got to [...]
Stand back Robert Downey Jr. - the real Iron Man is laying in a bed in Montreal! Today I wanted to share with you some of the details of our surgery. I was worried to do so before the surgery because so many things could have happened to change our surgical plan. Now that it [...]
Ben's fever resolved itself at about 4:00 a.m. Ben continues to have fast shallow breathing, but it could be related to his pain. He woke up this morning with a significant amount of pain, and we worked with the Acute Pain Management team at MCH to try to make him comfortable. Benjamin was given his own P.C.A [...]
First of all, we've had a bit better and less roller-coastery day than yesterday. We were able to extubate Ben this morning. By the time we did, we were both eager to do so. Once we pulled Ben out of sedation, in order to extubate him, he was extremely agitated with the tube. This caused [...]
After the news from our surgeon last night, Jesse and I were elated! It's amazing the way darkness can try to seduce your thoughts when you have so much at risk. We left Shriners, where we had been waiting, to head across to MCH. We were almost giddy with relief. We ran down and grabbed [...]
K...update. It is 5:30 our time, and I just talked to the surgeon. Ben should be out of the OR in the next hour or so. All the tricky stuff is done - they are just wrapping things up. The surgeon was pleased with how the surgery went. We were able to do both the [...]
This weekend I got to play with my friends here a lot! One of our favourite games is playing hospital. We all take turns playing doctor and we give the babies casts and x-rays and walkers. If the babies are bad, we give them morphine to stop them crying, but it's just a pretend needle. My [...]
If worry was an Olympic sport, I think I'd bring home the gold. Before you even start reading, I apologize; I have a lot of time on my hands. This is what I think it would look like if worrying was an Olympic sport. ************************************************************************** Announcer Bob: Well it's looking to be a grey day [...]
Crooked Journey 