One of the most difficult lessons that I have learned over the past few years was that I can't give hope to someone. It is not up to me to tell someone else that everything will be fine. I really resisted this idea at first, but over time I think I am starting to get [...]
Tag: scoliosis
I’m Gonna Catch a Leprechaun
I have been super busy building my leprechaun trap. We put all kinds of things in it to get the leprechauns to come, and when they do they are gonna climb up my rainbow ladder (because they love colors and ladders). When they try to grab all my gold and green and blue coins in it, [...]
Pajama Party
Imagine this conversation: Karen (to accountant) Hi there - I've printed out all my profit and loss statements for last year. I wasn't sure if this was the balance sheet you were looking for. Does that look right to you? Do you think I need to include the receipts for the new computer software I've been [...]
Special Weekend
We had a very special weekend. Every day I am so surprised by how nice people are to us. This morning one of the cleaner people came in and brought my mom some fresh bagels. That was such a nice thing! It is very quiet here on the weekend. My friend Amber is gone now, [...]
Surgery Postponed…
So we took some more x-rays today, and Benjamin's surgery has been postponed for a few weeks to March 27th. At that time we will still be vulnerable to further postponement because we will require an ICU bed at Montreal Children's Hospital, but for now that is our new intended surgery date. Although I am [...]
I Lost My Tooth!
I was so excited yesterday. I finally had a wiggly tooth. I found it after school. I have been waiting for this day for a long time. We went around to tell everybody all about it. When we were eating supper, mom told me to hurry up and eat my mini-burgers. Then I noticed my [...]
Beyond Language
I am always amazed at the instant connection hospital parents have with each other. It is a connection that goes beyond culture, language, and class. One of the volunteer jobs that I have at my local hospital is peer mentoring. This job entails the volunteers (hospital parents) to go and orient new parents to the hospital and [...]
An awesome weekend!
I had another awesome weekend! Grandma and my big sister Alecia flew all the way out to see me and we played and watched movies and played some more. I now have 12 Hot Wheels cars because Grandma got me one and my teacher keeps giving them to me for working hard. We played and [...]
Hospital Negotiations 101
Clinic Waiting Area - Shriner's Hospital 🇨🇦
Courage
The ladies here gave me a new superhero doll. His name is Courage. I'm a bit taller than him, but his head is bigger than mine. He can't have a halo because his head is too big and it would rip. Sometimes he is in my bed, wheelchair, or walker, so I have to punch [...]