When I woke up this morning I asked Mom if it was movie day. She said it was, and if I worked hard at physio and ate some food today I could go to the movie. I wasn't allowed to eat popcorn though because my tummy doesn't really like food yet. Instead I got to [...]
Tag: scoliosis
Scoliosis Surgery
Stand back Robert Downey Jr. - the real Iron Man is laying in a bed in Montreal! Today I wanted to share with you some of the details of our surgery. I was worried to do so before the surgery because so many things could have happened to change our surgical plan. Now that it [...]
Home Sweet Home Away From Home!
Ben's fever resolved itself at about 4:00 a.m. Ben continues to have fast shallow breathing, but it could be related to his pain. He woke up this morning with a significant amount of pain, and we worked with the Acute Pain Management team at MCH to try to make him comfortable. Benjamin was given his own P.C.A [...]
A Night in the ICU
After the news from our surgeon last night, Jesse and I were elated! It's amazing the way darkness can try to seduce your thoughts when you have so much at risk. We left Shriners, where we had been waiting, to head across to MCH. We were almost giddy with relief. We ran down and grabbed [...]
Earned my gold today!
K...update. It is 5:30 our time, and I just talked to the surgeon. Ben should be out of the OR in the next hour or so. All the tricky stuff is done - they are just wrapping things up. The surgeon was pleased with how the surgery went. We were able to do both the [...]
Ready for Surgery
This weekend I got to play with my friends here a lot! One of our favourite games is playing hospital. We all take turns playing doctor and we give the babies casts and x-rays and walkers. If the babies are bad, we give them morphine to stop them crying, but it's just a pretend needle. My [...]
If worry was an Olympic Sport
If worry was an Olympic sport, I think I'd bring home the gold. Before you even start reading, I apologize; I have a lot of time on my hands. This is what I think it would look like if worrying was an Olympic sport. ************************************************************************** Announcer Bob: Well it's looking to be a grey day [...]
A Famous Guy
A famous guy came to see me today at lunchtime. He was a hockey player and he is Canadian. I am too. Mom said his name was Brendan Gallagher. He had heard about my leprechaun trap, so I showed him a picture because the real thing got accidentally ripped the other day when I pulled out my [...]
If this was Survivor…
So here we are at our 39th day in the hospital. That means if this were Survivor we'd have a one in three chance of winning a million dollars. Now as I stand before Tribal council (or Ben's growing collection of bears, stuffies, and Courage) I look within and ask myself ...did I outwit, outlast, and [...]
I caught a leprechaun………almost!
Boy - these guys are so tricky. I didn't even know if they had been at my trap. When I put my hand in my trap, I could definitely feel something there. I was very excited. Then I grabbed something and it was a note. It said: Then I found some wrapped presents. This is what [...]