Ya, I know you think I misspelled that, but I didn't! The plural of fez (a flat topped hat) is fezzes or fezes. I thought fezes looked pretty similar to feces, so I opted for the first spelling and "Our Superheroes Wear Feces" is a way different story than I intend to tell at this [...]
Today was super awesome! This morning before anyone was even awake my mom and I dropped off candies and Valentines at everyone's door. After breakfast, I went to school, but in the middle of school some people from the Starlight Foundation came in and made cupcakes with us. The main cooker was a clown named [...]
Today was a very good day here. I do not have to stay in my room anymore. I was not sick this morning, and my nurse took my second IV out of my arm. Mom and I went to the playroom and did some Valentine's cards. It is very hard to look down, so I [...]
First of all, I apologize for the essay like nature of this post. The fact of the matter is, I have got way too much time on my hands, so I apologize. If you are a super busy person, you should just skip this one. Did I mention that we are in isolation? Yup...we are. [...]
This morning the medicine they gave me to make my back hurt made me get sick. Mom said I had to sit in my wheelchair today and I didn't want to. I was scared of it hurting too much, but I really liked sitting up and I stayed in it all afternoon. I even got [...]
Ben had a bit of a rough day! He's hanging in there, but the pain for him can be overwhelming at times. We are trying a lot of different medications and combinations, but it can be tricky to stay ahead of it. Surprisingly, the halo on his head - picture a steel bowling ball frame [...]
Ben made it through his surgery well. He had a difficult intubation, so they are keeping us at MCH overnight. They installed the halo and also did an anchor on his lumbar spine. He isn't talking much, but gives a thumbs-up when asked how he is. Tonight will be all about comfort and pain management. [...]
Today is my first surgery. I was very scared. They said they are going to put pins in my head and some in my back. I met the guy who was going to put me to sleep and he was so funny I forgot how scared I was. He juggled balls for me and threw [...]
Yesterday was a busy day. We were mostly at MCH (Montreal Children's Hospital). We started out at the Shriner's for a quick OT assessment. They were checking Ben's mobility and sense of touch as well as measuring him for some upcoming equipment. This will set the baseline standards for him. We also got to meet [...]
We're staying at McDonald's house and it is awesome! There is a big playroom and lots of TV's. Mom says I can stay here and play all day tomorrow if I want. Mom and I went to the store and got Toaster Strudel, so I am going to have that for breakfast. They gave me [...]
Crooked Journey 