School in the hospital has three major benefits: it gives the patients a regular routine which helps to pass the days; it helps distract from the aches and pains of everyday hospital life, and it provides a critical and necessary opportunity to help the students keep up with their studies back home. It also pulls [...]
They made me a walker here. It's pretty big, but I can push it all by myself. Everybody laughs and says they can't believe how good I am at walking. That's funny because I used to always walk. Sometimes I get stuck in doors or go into walls, but someone always helps me unstick. They [...]
Ya, I know you think I misspelled that, but I didn't! The plural of fez (a flat topped hat) is fezzes or fezes. I thought fezes looked pretty similar to feces, so I opted for the first spelling and "Our Superheroes Wear Feces" is a way different story than I intend to tell at this [...]
Today was super awesome! This morning before anyone was even awake my mom and I dropped off candies and Valentines at everyone's door. After breakfast, I went to school, but in the middle of school some people from the Starlight Foundation came in and made cupcakes with us. The main cooker was a clown named [...]
Today was a very good day here. I do not have to stay in my room anymore. I was not sick this morning, and my nurse took my second IV out of my arm. Mom and I went to the playroom and did some Valentine's cards. It is very hard to look down, so I [...]
First of all, I apologize for the essay like nature of this post. The fact of the matter is, I have got way too much time on my hands, so I apologize. If you are a super busy person, you should just skip this one. Did I mention that we are in isolation? Yup...we are. [...]
This morning the medicine they gave me to make my back hurt made me get sick. Mom said I had to sit in my wheelchair today and I didn't want to. I was scared of it hurting too much, but I really liked sitting up and I stayed in it all afternoon. I even got [...]
Ben had a bit of a rough day! He's hanging in there, but the pain for him can be overwhelming at times. We are trying a lot of different medications and combinations, but it can be tricky to stay ahead of it. Surprisingly, the halo on his head - picture a steel bowling ball frame [...]
Ben made it through his surgery well. He had a difficult intubation, so they are keeping us at MCH overnight. They installed the halo and also did an anchor on his lumbar spine. He isn't talking much, but gives a thumbs-up when asked how he is. Tonight will be all about comfort and pain management. [...]
Today is my first surgery. I was very scared. They said they are going to put pins in my head and some in my back. I met the guy who was going to put me to sleep and he was so funny I forgot how scared I was. He juggled balls for me and threw [...]
Crooked Journey 